Living With Chronic Conditions
woman holding leg in pain

CRPS is Manageable if Addressed Early

Overcoming complex regional pain syndrome

Contributor: Michael Stanton-Hicks, MD, Department of Pain Management

Complex regional pain syndrome (CRPS) is as bad as it sounds — severe, spreading chronic pain with redness, fluctuating skin temperature, and sometimes changes in body hair and nail growth. These issues make it hard for most patients to use their affected arm or leg, the body parts that are most often impacted.

As if that’s not enough, CRPS is not widely known by many doctors and is not well understood, so it is often misdiagnosed and many patients receive the wrong treatments or no treatment at all.

Most cases of CRPS develop after an injury to a limb. Up to 7 percent of children who suffer a traumatic arm or leg injury may develop CRPS shortly afterward. That rate is even higher in adults: about 8 to 10 percent.

Because CRPS can cause the arm or leg to stiffen over time, the pain usually worsens without treatment and makes movement more and more difficult. For these reasons, early diagnosis and the right treatment are critical.

Comprehensive treatment needed

Treatment of CRPS requires multiple therapy approaches carefully coordinated by physicians and therapists who are experienced in this complex condition.

Cleveland Clinic’s approach to CRPS has been shaped by Dr. Stanton-Hicks, MD, a consultant in our Department of Pain Management who is one of the world’s leading experts on the condition. He helped establish the Pediatric Pain Rehabilitation Program at Cleveland Clinic’s Shaker Campus, which provides an intensive program for children and adolescents with CRPS. This complements our Chronic Pain Rehabilitation Program, a similar program for adults with CRPS.

Both programs integrate a range of physical, occupational and psychological therapies — such as biofeedback, relaxation techniques and group therapy — on an inpatient and day-care basis over a three-week period. The pediatric program emphasizes psychological approaches, for patients and their parents alike, because of the importance of developmental changes in children’s responses to pain.

“Both programs aim to raise patients’ pain threshold and help them manage pain so that it’s not such a big part of their lives,” explains Dr. Stanton-Hicks.

Learning to manage the pain

The techniques learned in these programs, sometimes together with well-chosen medications, enable some patients with CRPS to successfully manage their pain and lead active, “normal” lives. Other patients require additional interventions, such as nerve blocks or spinal cord stimulators that modulate pain by delivering electricity to the spine.

About 80 to 85 percent of children and adolescents with CRPS who complete this intensive array of therapies eventually get “almost completely better,” says Dr. Stanton-Hicks (see story of Jordan Keen in next article). That degree of recovery is unusual in adults, where the aim is more about maintaining function and reducing pain to a level that lets patients keep working and lead a relatively normal life, he explains.

To make an appointment with one of our pain management specialists, call 216.444.PAIN (7246)

Tags: chronic pain, CRPS, pain awareness month, pain management
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  • T. Hopper

    My son has CRPS and completed the pediatric pain rehab program in April of last year. It was life-changing for him and restored the function to his leg. Amazing program run by amazing people!

  • ornurse32

    My son is 11 years old and is suffering terribly from a leg injury that caused CRPS. We are being treated by local physicians but NOTHING has helped. It has only been 7 weeks today but he is in CONSTANT intractable pain 24/7. Our insurance says they will not cover the Cleveland Clinic until all treatments have failed here in Michigan. Any advice? Two failed nerve blocks and max meds haven’t touched it.