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Heart & Vascular Health | Heart Failure
Lyons family at Cleveland Clinic

Flight for Life: New Year, New Heart Episode 1

A transplant story with heart starts here

This article is more than 2 years old.
There may be more recent information available.

On Christmas Eve 2011, Porter Lyons was spending a quiet holiday playing board games with his family in Garrettsville, Ohio. He had been fighting what he thought was a bad cold or pneumonia. When it got so bad he couldn’t breathe anymore, he knew it was something worse.

He told his father, Doug, that he wanted to talk to his girlfriend, Abby, right away. Doug could sense just how wrong things were as he watched his son try to steady himself on a chair and reach up to his throat, trying to open an air passage that seemed shut. Porter’s heart was beating alarmingly fast.

The symptoms were too much to ignore. Christmas would have to wait.

The family took Porter — a senior at James A. Garfield High School and a straight-A student— to the local EMS facility, where the emergency team quickly decided to transport him to Robinson Memorial Hospital in Ravenna, Ohio. There, ER specialist Brian Adams, MD, stabilized his condition and performed an ultrasound that showed that Porter’s heart was dangerously enlarged. It was about twice the size of a normal heart for someone his age, and his lungs had filled with fluid.

Fast facts

1968: The year Cleveland Clinic performed its first official heart transplant.

1,500-plus: The number performed since then.

Heart transplant resources

Time was short. Before long, Porter was on the first helicopter ride of his life — a medical transport flight to Cleveland Clinic.

Cardiomyopathy and a malfunctioning heart

Porter was suffering cardiomyopathy; his heart was overcompensating and had begun to malfunction. There are several different types of cardiomyopathy, but heart transplant surgeon Nicholas Smedira, MD describes Porter’s case as dilated cardiomyopathy, a form that is sometimes mysterious but likely inherited.

The scene was all too familiar to Doug and his wife, Karen. In 1987, Doug was diagnosed with cardiomyopathy and received a heart transplant at Cleveland Clinic. Back then, the disease was diagnosed as viral. Genetic testing was not nearly as advanced then, and Doug’s doctors had no reason to believe the cardiomyopathy was genetic.

Now, 25 years later, he found himself watching his son being carried off in a helicopter, and a strange thought occurred to him.

“There he goes; he’s going on his adventure,” Doug thought.

Adventures were nothing new for Porter, an active Eagle Scout who had led his peers through the wilderness on strenuous treks. This one would be different, but no less strenuous. 

Tags: dilated cardiomyopathy, heart disease, heart failure, heart transplant, Porter Lyons, VAD
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  • John LaFosse

    My heart issues began with a nasty chest cold and cough that would not got away. I went to the emergency room to get treatment and was given Abuterol by Warwick pharmaceuticals. I was diagnosed with a murmur and given the inhaler. The side effect warning is chest pain to which it should be discontinued and emergeny room treatment is needed. I went to a cardiologist and was diagnosed with a Bicupid aortic valve and the “chest pains” have not gone away. Is anyone considering not treating patients with Abuterol that have heart murmurs or heart defects? I was given the see you in a year speech and not given beta blockers for 2 years. Seems to me like the ball was dropped, not to go into detail but my situation did get worse and I’m waiting for the phone call to go into cathetization with the likelyhood of surgery. Is it me or is this like kicking a patient in the gut?