When you have inflammatory bowel disease
(IBD), you can have some rough seas to navigate at work. You may be dealing with diarrhea, bowel urgency, stomach pain and anemia — symptoms that often don’t mesh well with a long day on the job.
Of course, the goal is remission so you can live, work and play symptom-free. But for the nearly 2 million Americans with IBD, most commonly Crohn’s disease
or ulcerative colitis
, that is not always possible.
But the good news is that if you plan well, you often can prevail in your job and limit the effect of IBD.
1. Consider what is important to disclose
Let’s say you’re in the process of looking for a job. It’s important to understand your needs. Ask yourself: How will this condition and symptoms affect my working hours?
“If you happen to have frequent bowel habits, you might not want to get a job as a flight attendant,” says gastroenterologist Jessica Philpott, MD, PhD
. “Knowing your body and trying to find a job that fits your body’s schedule is good.”
Should you tell a potential employer about the condition? You are not required to disclose it, she says, but it is sometimes a good idea to do so if you require regular absences.
“It’s not always the case, but most people will be understanding, so you have to decide what is best for your particular situation,” she says. “You should consider disclosure it if you believe it will greatly impact your work performance,” she adds.
2. Ask for accommodations if you need them
Once you’re working, if your symptoms are rare or easily manageable, you may not have problems. If you have baseline symptoms and need accommodations, however, there are options.
The Americans with Disabilities Act
requires employers to make accommodations for people with disabilities. This act protects you if you have limitations of a “major life activity,” which includes bodily functions like digestion or bowels. This includes episodic conditions that are substantially limiting when not in remission.
Some examples of accommodations include moving you nearer to a bathroom if you typically need to go five times a day. Or, if mornings are tough, offering a more flexible schedule may help, such as allowing you to come in and go home later.
Time off is also an issue for people with IBD. You may need extra days off for treatment, colonoscopies, sick days and infusions.
Dr. Philpott says many of her patients fill out Family and Medical Leave Act (FMLA) paperwork annually to get extra days off if they need them. The FMLA entitles employees to take unpaid leave for up to 12 weeks over the course of a year for medical reasons. To qualify, you must work in an organization that has 50 or more employees for 12 months before applying.
3. Prepare — and expect the unexpected
When you have IBD, it’s a good idea to prepare for anything and everything. Dr. Philpott suggests keeping these basics nearby at work:
- Backups of rescue medications (such as anti-diarrheals) that your doctor has approved
- An extra set of clothes in case of emergency (if you have urgency issues)
- Extra supplies for an ostomy, if you have one
- Enough food at your desk so you don’t have to eat out or use vending machines if certain foods trigger symptoms or you need to eat small, frequent meals
4. Take steps to manage stress on the job
There are few people who can avoid stress
altogether while at work. This is a particular challenge with IBD because stress often triggers symptoms.
If the stress in your job is overwhelming, you may need to look for a new job. If the stress is manageable, however, Dr. Philpott suggests that you learn and use good stress-reduction techniques. Some that work well in the workplace include:
- Breathing exercises
- Guided imagery (a technique that focuses the imagination in a positive way, often with words or music)
- Recordings that promote relaxation
Physical activity is also a good stress reducer. If you are able, walk during breaks or take yoga or tai chi classes during lunch to reduce stress.
In general, it is important to know your body, the disease and the law, Dr. Philpott says. This will allow you to work with your employer and make the best use of your talents and skills as you succeed at your job.