5 Things You Should Know About Cluster Headaches

Plus, the new treatment giving hope to those who have them
Woman experiencing a cluster headache

When people think about bad headaches, migraines usually come to mind. But migraine headache pain can’t touch the debilitating, extreme pain that comes with cluster headaches.

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“Cluster headaches are extremely rare, affecting only one in 1,000 people,” says headache and facial pain specialist Emad Estemalik, MD. “These severe headaches usually begin before age 30 and sufferers are almost exclusively men.”

Whether or not you’re intimately familiar with cluster attacks, here are five things you should know about cluster headaches:

1. Cluster headaches have very specific features

There are no warning signs that a cluster is about to hit you like a freight train. Even if you’ve experienced one in the past, you can’t anticipate or predict when you’ll get another one. But you’ll know it’s a cluster headache because of the extreme pain (which is why they’re sometimes called suicide headaches). You may also experience these symptoms that occur only on the side of the face that’s experiencing pain:

  • Teary eye.
  • Runny nose.
  • Red eye.
  • Droopy eye.

2. Cyclical and cluster are synonymous when it comes to headaches

Aptly named, these headaches occur in clusters: “Cluster headache cycles may be separated by a period of months or even years,” says Dr. Estemalik. “People enter periods where they have no headaches. But eventually, they rear their ugly heads again.”

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Here’s how cluster headache cycles work:

  • A cluster cycle arrives unannounced: It’s like when your least-favorite Aunt, Mildred, shows up without warning during the holidays.
  • The cycle can last weeks to months: How long is Auntie planning to stay? You have no idea, and neither does she.
  • Within each cluster cycle are cluster attacks: Mildred causes painful events throughout the day, like hitting you with her cane when you walk by and repeating passive aggressive comments about your house’s cleanliness.
  • Cycles include up to six attacks each day: Good old Millie, the hits keep coming.
  • Each attack can last 15 to 180 minutes: Three straight days of Aunt Mildred? Please, stop!

3. Prompt treatment is your best defense

The first time you experience a cluster headache, you’ll probably make a beeline to the emergency department to determine the source of your symptoms. Doctors use brain imaging and lab tests to make a correct diagnosis.

“Typically for a cluster cycle, we start with a course of steroids because that can reduce the severity of the attacks and accelerate recovery from the cycle,” explains Dr. Estemalik. “We also start abortive treatments to inhibit future attacks.”

Abortive cluster headache treatments include:

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  • Inhaled oxygen.
  • Certain injectable triptan (headache) medications.
  • Procedures such as occipital nerve and Sphenopalatine Ganglion Blocks (SGB).

4. You can prevent cluster headaches from steamrolling you

With subsequent cycles, you’ll want to contact your neurologist or headache specialist to start preventive drugs and abortive treatments when you first experience symptoms. You’ll continue to use the preventive treatments for at least two to three weeks after a cycle ends.

“The goal of preventive drugs is to eliminate the cycle or the recurrence of a cycle,” says Dr. Estemalik. “The goal of abortive treatments is to eliminate the attacks that occur within the cycle, so you don’t have to live with excruciating pain.”

5. Hope is on the horizon

Researchers are exploring new ways to treat cluster cycles. One new treatment is a vagal nerve stimulator. It has been shown to reduce the number of cluster attacks experienced within a cycle. The hand-held device stops the attacks by sending a mild current to the vagus nerve, which sends sensory information to the brain. Patients place the device on their neck for around 90 seconds, two times a day.

“There are a whole lot of negatives when it comes to cluster headaches. But I think the research that’s going into developing treatments that can bring immediate and long-term relief is a huge positive,” says Dr. Estemalik. “There’s definitely reason to be hopeful.”

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