Cancer is among the leading causes of death in the world, according to the National Cancer Institute.
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While there are several types of cancer screenings available, some are specific to a person’s anatomy like cervical, ovarian or prostate screening. Transgender people, whose anatomy may not match their gender identity and expression, may find that existing health screening protocols leave them out.
More than 1.4 million Americans identify as transgender. Overall, the transgender community is less likely to seek out information on cancer screenings or get them at all due to many factors.
“We know that LGBTQAI+ people and many transgender people may be underinsured or uninsured, making it difficult or harder to access screenings that may be unaffordable for them,” says transgender health specialist Henry Ng, MD (he/they).
Dr. Ng talks about the importance of cancer screenings and how transgender individuals can overcome barriers to getting the appropriate healthcare.
Why cancer screenings are important
In 2021, an estimated 1,806,590 new cases of cancer will be diagnosed in the United States and 606,520 people will die from the disease, according to the American Cancer Society.
Having access to cancer screenings, especially in the transgender community, is vital, says Dr. Ng. Studies have shown that health, personal and economic disparities in transgender communities can result in a higher risk of certain cancers like lung and cervical cancer.
“If we don’t have transgender folks at the table, and we don’t move the table to where people are, people will develop cancer, potentially at higher rates and others will be detected when it’s entirely too late,” Dr. Ng says.
Barriers to getting cancer screenings
There are numerous obstacles transgender people face when it comes to receiving healthcare, let alone cancer screenings. Here are a few:
- Lack of insurance or being underinsured. Data has shown that LGBTQAI+ people may lack healthcare coverage or be underinsured. “It’s great that there are screening programs that are low-cost or free,” says Dr. Ng. “But even those are not always available for everyone.” People living in rural areas or outside a large city may find it difficult to find care.
- Discrimination by healthcare providers. Some examples include healthcare professionals who refuse to see transgender patients or healthcare professionals who refuse to use a patient’s pronouns. “If a person has had a negative health experience, they’re less likely to engage and stay engaged in their own health promotion,” says Dr. Ng.
- Lack of information. First, healthcare providers may lack knowledge about transgender identity and sexuality, and secondly, some in the transgender community may not be aware of recommendations around healthcare screenings or that those recommendations apply to them. “They may feel they are at low-risk,” says Dr. Ng.
How to overcome barriers
If you are searching for a new doctor or seeking healthcare, there are a few things you can do to ensure you have a positive experience.
- Do your research. Before making an appointment with a doctor, you can call or email their office to see if the healthcare professional has had experience working with LGBTQAI+ people. Organizations like GLMA and the Human Rights Campaign list organizations and hospital systems that support the needs of LGBTIA+ people.
- Trust your community. Don’t be afraid to ask others for recommendations. “Word-of-mouth is still very powerful,” says Dr. Ng.
- Look for examples of inclusive language. Pay attention to how a healthcare provider communicates with their patients. Are they using inclusive language and making sure that everyone feels welcomed?
- File a complaint. If you have experienced discrimination in a healthcare setting, Dr. Ng suggests filing a written complaint. “Patients have a choice and a voice,” says Dr. Ng.
Several factors like obesity and alcohol and tobacco use can magnify the health disparities and impact of cancer in the transgender community. The general rule to follow: If you have a body part and there’s a cancer screening available, you should receive that screening. Here are a few screenings:
The American Cancer Society recommends people assigned female at birth (AFAB) who are ages 45 to 54 get a mammogram each year. This is an important screening if you’re transgender, as the use of progestin and estrogen can increase the risk of breast cancer.
Some transgender people may be uncomfortable with mammograms. Dr. Ng suggests asking about alternative options like a breast MRI or ultrasound.
Screening for cervical cancer, called a Pap smear or Pap test, should begin at age 21 in people who were AFAB. Performed as part of a pelvic exam, doctors can also test for human papillomavirus (HPV), a common sexually transmitted disease (STD) that increases your risk of cervical cancer. Anyone AFAB should get screened every three to five years per 2021 ACOG guidelines.
Taking testosterone can lead to changes in the cervix which can appear to be abnormal. Make sure you notify your healthcare provider of hormone use before a Pap smear.
For transgender men who are at high risk for cervical cancer or find the procedure upsetting, a hysterectomy that includes the removal of the cervix may be an option.
It can be difficult to detect ovarian cancer until it has spread. Your doctor will examine your ovaries and uterus during a pelvic exam. If you have symptoms like bloating in your abdomen or your doctor recommends further testing, you may undergo an ultrasound, computer tomography (CT) scan or magnetic resonance imaging (MRI).
For transgender men who are uncomfortable with pelvic exams, the removal of the ovaries, uterus and cervix may be recommended.
Anyone assigned male at birth (AMAB) should start getting a prostate cancer screening around age 55. A digital rectal exam is the main way to screen for prostate cancer, but your doctor may order a prostate-specific antigen (PSA) blood test. You should be screened every year or two based on your PSA levels.
If you’re unsure about whether you need a screening or not, check with a trusted healthcare provider. If you do receive a cancer diagnosis, community programs and support groups can provide a lot of information and comfort.
“See if community programs are inclusive and how they intersect between LGBTAQI+ care and cancer care,” says Dr. Ng. “Having a network around you can help support you during a particularly challenging and vulnerable time in your life.”